What is Paediatric Palliative Care
WHO Definition of Palliative Care for Children
Palliative care for children represents a special, albeit closely related field to adult palliative care. WHO’s definition of palliative care appropriate for children and their families (WHO; 1998a):
- Palliative care for children is the active total care of the child’s body, mind and spirit, and also involves giving support to the family.
- It begins when illness is diagnosed, and continues regardless of whether or not a child receives treatment directed at the disease.
- Health providers must evaluate and alleviate a child’s physical, psychological, and social distress.
- Effective palliative care requires a broad interprofessional approach that includes the family and makes use of available community resources; it can be successfully implemented even if resources are limited.
- It can be provided in tertiary care facilities, in community health centres and even in children’s homes.
Holistic, Compassionate Care
- relief of pain and other symptoms
- equipment needs (e.g. care at home or access to community)
- in home supports (e.g. nursing visits)
- access to an inter-professional team (including allied health staff)
- short break services
- support for emotional and social concerns
- spiritual care
- culturally appropriate care
- preferences for future care
- financial assistance