Website Links

Australian links

• Palliative Care Australia
• Paediatric Palliative Care National Action Plan Project
• The Groundswell Project
• National Institute of Neurological Disorders and Stroke (National Institute of Health)
• Paediatric Pain Profile
• National Cancer Institute
• Cancer Council Australia
• Association of Paediatric Haematology / Oncology Nurses

Community organisations

• Redkite
• Heartfelt 
  A volunteer organisation of professional photographers from all over Australia and New Zealand dedicated to giving the gift of photographic memories to families that have experienced stillbirths, premature births or have children with serious and terminal illnesses
• Make-a-Wish Australia
• Red Nose (SIDS and Kids)

National education projects

• PEPA Program of Experience in the Palliative Approach
• PCC4U Palliative Care Curriculum for Undergraduates
• Palliative Care Bridge

International links

• Together for Short Lives - UK
• International Children's Palliative Care Network (ICPCN)
• Little Stars videos (ICPCN)
• World Health Organisation definition of Paediatric Palliative Care
• New Zealand Skylight 
  Skylight is a national not for profit trust that enables children, young people, their family/whanau and friends to navigate through times of trauma, loss and grief
• New Zealand Paediatric Palliative Care Clinical Guidelines
• Courageous Parents Network
• International Association for the Study of Pain
• Association of Paediatric Haematology / Oncology Nurses
• Children's Hospice International
  Non-profit organisation established in 1983 that has pioneered and promoted the idea that critically ill children should have access to hospice / palliative care along with curative care from the time their life-threatening illness has been diagnosed. 

Page updated 22 November 2022